Jett Foundation announced its most ambitious milestone to date: the launch of a capital campaign to fund the building of Jett’s Place, a premier wellness and retreat center serving as a dedicated sanctuary for individuals and families affected by Duchenne muscular dystrophy (DMD). The fundraising campaign was anchored in its initial phase by two transformative $1 million donations from the Emilson Family and ITF Therapeutics.
Located on a 10-acre campus in Norwell, Massachusetts, Jett’s Place will serve as Jett Foundation’s national headquarters and provide barrier-free accessibility, specialized wellness care, adaptive nature and recreation, and educational programs designed with input from Duchenne families. The campaign sets a $10.7 million goal and has already raised over $5 million during its quiet phase, as the foundation invites broader community support to bring the project to life.
Duchenne muscular dystrophy is a progressive neuromuscular disorder diagnosed during childhood, causing loss of motor, pulmonary, and cardiac function, and premature death. It affects every 1 in 5,000 live male births and some females. There is no cure, and children with Duchenne typically lose the ability to walk around age 12 and succumb to the disease in their early to mid-twenties.
Since 2001, Jett Foundation, headquartered in Norwell, Mass., has worked to empower people and families impacted by Duchenne through transformative programming, educational opportunities, and ongoing support for every stage of the journey. The foundation is a registered 501(c)(3) charity, and all donations are tax-deductible. More information is available at www.jettfoundation.org.
ITF Therapeutics, established in January 2024 as the United States affiliate of Italfarmaco Group, develops and commercializes treatments for rare diseases. The company combines end-to-end commercial execution with close listening to advocates, researchers, clinicians, and families. For more information, visit www.itftherapeutics.com.
The capital campaign for Jett’s Place represents a critical step in addressing the unique needs of the Duchenne community, providing a space designed for accessibility and wellness. The initiative underscores the growing recognition of the importance of supportive environments for individuals with rare diseases and their families. With over half the goal already raised, the foundation aims to complete the project, which will serve as a national hub for Duchenne-related programs and services.
